A problem I didn’t expect to encounter…

I’ve spent a few days trying to decide if I post this for everyone to see or if I was going to keep this private.  After much soul searching and talking with some friends, I decided that this blog was designed to help people get through the TKR (Total Knee Replacement…in case you are just joining in) process.  If I leave out important information because of being afraid of comments, then I am doing nobody a service here.  I will be honest, I don’t even think anyone besides my sister and a few friends are reading this…but even so…one day, someone may read this and know someone who knows someone who needs to see this.

Tomorrow will be nine weeks post-op.  My knee is doing very well.  I am where I need to be physically.  I am full extension along with hyperpextension.  I am up to 125 degree bend.  I’m hoping to get up to 130, but it will take a few more weeks.  I am still dealing with the Baker’s cyst I have behind that knee.  I can now go up AND down stairs.  Down is still a bit challenging, but I am making it easier each time.  My incision has healed nicely.  I still have little feeling on the outside of my knee, but the spot for it is getting smaller.

So, if everything is going fine…you may be wondering what the problem is.  So…whew…here goes.  My knee problems have been going on for years.  The last two years have been the most difficult.  I started taking Vicoden for the pain at night so I could sleep.  That worked for about 6 months and then it was no longer helping.  The doctor’s changed my pain meds to Percocet, but that only lasted for a few months.  They finally put me on Nucynta and that finally did the trick.

We started at 25mg and by the time I had surgery, I was taking 150mg of Nucynta each day.  After surgery they dropped me down to Percocet and then finally down to Vicodin.  Last weekend (not just this past weekend) I decided that since I’m doing everything pretty good, it was finally time to stop taking my pain meds….so I did.  On Monday morning I noticed that I was experiencing a panic attack.  Now, I’ve had panic attacks before…usually due to stress.  I couldn’t figure out what I was stressed about, so I just took half of a Xanax.  That did the trick.  Tuesday I woke up with a panic attack and took another half of Xanax but was still feeling very “off”…just not right.  By Wednesday morning, I was shaking, having heart palpitations, and sweating.  I took my blood pressure, but it was normal.  My heart rate was a bit high, but my machine didn’t note any unusual heartbeat patterns.  I made the decision to go to my primary doctor’s office and I’m very thankful I did.

I explained to her my symptoms and she took a look at my med list (I keep a small card with all my medications and supplements as well as how much and how often I take them.  If you don’t do this yet, you really should.  As someone who has worked in public safety for a while, I know how important this is to medical personnel who may be called to help you.).  She asked me about my pain meds and I told her just what I finished telling you here.  She listened to my heart and lungs and checked for swollen nodes.  She checked out my eyes, ears, and nose as well as my throat.  She finally sat me down and told me that she suspected that I was going through withdrawals.  I told her that there was NO way I could be going through withdrawals because I am not an addict.  She then worked out a plan to wean me off the drugs this time.  I was going to argue with her, but I was mortified. 

Off to the pharmacy I went to get more pain meds.  I sent off an email to one of my friends who is a nurse exposing my dirty secret…well, not much of a secret really.  I should have seen this coming.  Two years on pain meds should have given me a clue.  I’m an intelligent woman who knows a lot of medical information.  He called me and talked me through the differences of addiction and dependence.  He advised that I have dependence and it WILL go away.  I just need to follow the plan my PA (Physician’s Assistant) outlined for me.

I took the first one when I got home and within an hour I notcied a HUGE difference in how I felt.  I felt much better and more in control.  So, I have to admit…I was dependent on the pain meds.  I am now on day six of the process and I’m feeling much better.  The goal is to be completely off the meds by the end of next week.  I have already stepped down once and still feel really good.  I was embarrassed and worried about repercussions from work, but then after reading about drug dependence, I understand more and am now confident that this is an issue that will only be an issue a short while longer. 

The moral of the story is just because you know a lot of things, doesn’t mean you know everything.  Take the time to listen to your body.  If something seems wrong, you should listen to your body and talk to your doctor.  This is your one and only body.  Listen to it and learn.

Til next time!!

8 Weeks Post-op now

Hey, folks.  It has been a bit, but I wanted to check in.  Things are going better, but I definitely started traveling too soon.  Even after a week to recoup, I am quickly realizing that I should have waited longer again.  Working 80 hour weeks is too much for the knee.  Trying to keep it elevated has been a challenge as I have to get up and check on the users to make sure they are doing okay.  At least this place is a a bit smaller so I don’t have as far to walk.

I went to sleep about 0930 this morning (I’m working mids this week again).  I was actually sleeping pretty good until around 1400 when I woke up in excrutiating pain.  I’m not sure what happened.  Maybe I twisted in my sleep or something, but I woke up in tears and it took me a couple of hours to settle back down to go to sleep.

I worked with a trainer last week to start working on strengthening my knee as the therapist is working with me to calm down the baker’s cyst I have.  The workout was really good, especially considering we didn’t use a lot of weights.  We used the 22.5 pound dumbbells for my arms and just body weight for the legs.  We used the fit ball to do baby squats against the wall and for roll outs for a great core workout.  I was a bit doubtful that I would get any benefit from such a workout.  However, the next day I DEFINITELY felt it…especially in my buttocks and stomach area.  I wil be working with the trainer again on Sunday (I think).  He is going to write out a routine that I can use on a regular basis and continue to improve my strength and flexibility.

I am at 120 degree in my bend and full extension plus about 5 degree hyper extension.  Stretching is very important.  I will admit…I hate stretching.  It is boring and it reminds me that I am not flexible and not stretching enough.  So, I make myself do it…I grumble the whole time, but I do it.  🙂 

I just ordered a different cuff to go with my cryo-unit.  I found a thigh cuff.  I thought this might help since I have the baker’s cyst behind my knee.  I have been using the knee cuff for the swelling on the front and then taking that off and using an ice pack on the back of my knee.  I ordered the thigh cuff off of Amazon.com and hope that this will allow me to reduce the swelling on both the front and back of my knee at the same time.  I will let you know how it goes.

The pain is definitely decreased since prior to the surgery. I have gone down from 300 mg of Nucynta to 10 mg of Norco.  I can walk most of the day without the cane now. It is just the end of the day when I’m tired and my knee gets sore that I have to use it…and that is mainly for stability.  I have no regrets of doing this surgery.  Well, maybe just one…I wish I could have had it done sooner.  That being said, I am glad it is over and I’m in the healing process. 

Ok, time to get back to work.  Have a great rest of the week and I will check in once I get home.